Wednesday, January 19, 2011

Kindred spirits: Part 1 (Joey)

Joey is an 8 month old cutie, would you not agree?!? He is actually one of my best friend's nephew. His parents are Maura and Tom and he is the youngest of 3 boys. Joey has had many stays at Johns Hopkins Hospital in Maryland. Joey's story began on the day of his birth, May 5, 2010. He was born at 33 weeks gestation, and he had had IUGR- intrauterine growth restriction. Basically meaning he was small for his gestational age. Even though he spent 4 weeks in the NICU, Joey had no issues other than his growth. He stayed a month because it took him that long to go from a birth weight of 3lb, 8oz to the discharge weight of 4lb, 6oz.

He had a lot of issues with poor breathing and lack of growth. Everyone they went to see just gave him more inhailers and nebulizer treatments. It wasn't until the first Pulmonary appointment at Hopkins that the doctors attempted to come up with a more concrete answer. Joey got to ride in both a helicopter and an ambulance!
Joey was at Hopkins for three weeks the first time and they found that he has:
-Chronic Lung Disease
-Esophageal Strictures
-Aspiration Pneumonia
-Gastroesophageal Reflux
-Gastroesophageal Reflux Disease
The lung disease and pneumonia are due to the aspirtation which is caused by the esophageal strictures. We are hopeful that with time, he will grow out of this. If not, it could remain a chromic (but manageable) issue for the rest of his life. He got a G tube inserted on 12/23 to bypass the esophagus, hopefully lessening the likelihood for aspiration.
His Mommy says "Now we just wait and see..." Please continue to pray for Joey, his parents Maura & Tom, and his brothers.

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